Karachi: Founder of Afzaal Memorial Thalassemia Foundation (AMTF) Dr Asim Qidwai on Tuesday said approximately 1260,000 people are suffering from Thalassemmia disease in Pakistan and implementation on thalassaemia law is the only way to control prevalence of the disease.
He expressed these views during a media briefing before a reception organized in the honour of health reporters at AMTF Office Karachi.
Renowned Neurologist Dr Abdul Malik, Hematologist Dr Nadeem Nusrat and Rehan Yaseen were also present.
Dr Qidwai said thalassaemia cases are on rise in the Pakistan like other countries and about 80,000 to 100,000 cases are detected every year in the country. He said thalassemmia is a fatal disease and it transmits from carrier parents to their babies. He said thalassemmia carrier parents increase the risk of sending the diseases to their next generations, thus screening for this disease before marriage is vital to check it. He informed that 5,000 babies are born with the deadly disease every year.
He said Sindh government had passed a law for thalassaemia screening test before marriage but unfortunately this law is yet to be implemented. He said it is responsibility of State of give healthcare facility to people without any discrimination but unfortunately the healthcare was the most neglected sector in Pakistan.
Neurologist Dr Abdul Malik said currently 673 thalassaemia patients were registered with their foundation and they are being provided treatment, diagnostic and other facilities at their center. He said thalassaemia treatment is very costly in Pakistan and it needs RFs0.2mn for treatment of one patient annually.