KARACHI: Around 5,000 babies are born with thalassemia disease every year in Pakistan, while 80,000 to 100,000 children are living with this blood disorder, so the government should implement thalassemia law to control the prevalence of the disease. This was stated by CEO Afzaaal Memorial Thalassemia Foundation (AMTF), Tariq Aziz, during a press conference at Karachi Press Club on Tuesday.
He said prevalence of inherited blood disorders like thalassemia, hemophili, aplastic anemia and others diseases are on the rise in the society. He informed that approximately over 1.2 million people are thalassemia patients in the country.
He said thalassaemia is a blood disorder and a common inherited disease with no cure and most of the patients of the genetic disorder have to endure blood transfusion for life. He said disease prevails because of marriages among close relatives.
He said chance of having thalassaemia major in every pregnancy had increased. He said the government should implement thalassemia law and should launch a massive campaign for the prevention of the disease.
He informed that AMTF is serving the thalassemia and other blood diseases suffering children since 2003, and 1100 registered thalassemia patients are availing treatment facilities. He said AMTF had established Day-Care Center, Blood Donor Center, and latest lab to provide modern health facilities to poor patients.
He said treatment of thalassemia patients is very costly and AMTF is providing treatment or diagnostic facilities to patients free of cost; therefore, philanthropists may extend their support in this regard. Consultant Hematologist Dr Nusrat Nadeem, Member Advisory Board Atiq-ur-Rehman were also present on this occasion.